Skip to content Skip to navigation

Major Healthcare Organizations Align to Share Genomic and Clinical Data

June 6, 2013
by Gabriel Perna
| Reprints

Seventy major healthcare organizations, including hospitals, associations, and research groups, have announced the formation of an alliance dedicated to sharing and integrating genomic and clinic data. The global, non-profit alliance features notable institutions such as Harvard University, Beth Israel Deaconess Medical Center, Johns Hopkins University School of Medicine, and Brigham & Women’s Hospital.

An article on the Eli and Edythe L. Broad Institute of Harvard and MIT website states that the organizations participating have signed a letter of intent to work together to create a not-for-profit, inclusive, public-private, international, non-governmental organization that will develop a framework of international standards that can oversee how genomic and clinical data are shared. The vision of the 70 organizations is that both clinical and genomic data will be stored in platforms built on interoperable standards.

The creation of this group came from a January meeting where 50 colleagues from eight countries met to discuss the current challenges and opportunities in genomic research and medicine. They decided this kind of framework was needed for the sake of medical progress.

A list of the participating organizations can be found here.

Linking and sharing clinical and genomic data has become increasingly popular in medicine. Recently, Mount Sinai Medical Center announced that 25,000 people have signed on to participate in its biobank program, BioMe, where each patient has broadly consented to DNA sequencing, contact from researchers, and longitudinal studies related to data embedded in the electronic medical record (EMR). 

Other initiatives have been announced at Oregon Health & Science University (OHSU) as well as Weill Cornell Medical College and NewYork-Presbyterian Hospital

Topics

News

CMS Extends Deadline for eCQM Data Submission

CMS is extending the deadline for eligible hospitals in the Hospital Inpatient Quality Reporting (IQR) and Meaningful Use programs to submit their electronic clinical quality measure (eCQM) data from 2016.

NorthShore Revalidated by HIMSS Analytics as Stage 7 Worthy

Due to its continued use of IT to improve patient care and reduce costs, Chicago-based NorthShore University HealthSystem has received Stage 7 revalidation on HIMSS’ acute care EMRAM and outpatient EMRAM for its hospitals and associated clinics.

Cybersecurity Consulting Firm CynergisTek Acquired by Auxilio

Austin, Tex.-based cybersecurity and privacy consulting firm CynergisTek has been acquired by Auxilio, Inc., a provider of document workflow solutions and IT security services based in Mission Viejo, California, in a deal valued at up to $34.3 million.

Healthcare Data Breaches: A Year in Review

The latest year-in-review Breach Barometer report from Protenus paints a stark picture—2016 average at least one health data breach per day, affecting more than 27 million patient records.

Healthcare Industry Could Save $9.4B with Full Adoption of Electronic Transactions

The healthcare industry continues to make modest progress toward full adoption of electronic business transactions, but significant gaps remain, representing an opportunity for $9.4 billion in savings, according to new data from the 2016 CAQH Index.

ONC Announces Phase 2 Winners of Consumer, Provider App Challenges

ONC today announced the Phase 2 winners for the Consumer Health Data Aggregator Challenge and the Provider User Experience Challenge.