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At UC Davis Health, Patient-Generated Data Gets Real

February 7, 2017
by Rajiv Leventhal
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For its diabetes improvement project, more than 1.4 million patient-generated health data points have been integrated into the EHR for clinical review and patient health management

Senior leaders at the University of California Davis Health System (UC Davis Health), a Sacramento-based patient care organization serving 33 counties covering a 65,000-square-mile area north to the Oregon border and east to Nevada, have long been focused on using technology to keep patients healthy while lowering costs. One example of this is its Center for Health and Technology Telehealth Program, which was established in 1996 to improve access to specialty neonatal care for expectant mothers living in a small community 60 miles from the UC Davis Medical Center in Sacramento. Today, that telehealth program, which when it started was one of the pioneering projects in the field, is one of the largest telehealth programs in the country.

UC Davis Health’s latest health IT endeavor is one that earned the organization semifinalist status in the 2017 Healthcare Informatics Innovator Awards program. The technology aim of the project, called “Integrating Patient-Generated Health Data to Improve Health,” included diabetes and better blood pressure initiatives that would leverage patient-connected devices and integrate the patient-generated data points into the electronic health record (EHR), thus enabling clinicians to utilize coaching for behavior change when necessary.

More specifically, the clinical aim of the diabetes initiative was to improve the health of diabetic patients through the strategic use of technology and health coaching. From a technology standpoint, the aim was to leverage patient-connected devices (i.e. fitness trackers) and integrate the patient-generated data points (i.e. steps, active calories, resting calories, etc.) into the EHR via a vendor-neutral platform. Similarly, the clinical aim of the better blood pressure initiative was to improve the health of patients diagnosed with hypertension. By incorporating patient-reported blood pressure readings via connected devices into the EHR, clinicians could utilize coaching for behavior change when necessary, officials of UC Davis Health said.

For the diabetic patient initiative, the aim of the health coaches and clinical care providers was to recruit 300 patients over a 12-month period. And for the better blood pressure initiative, the aim of the health management and education team was to recruit 300 patients over a six-month period. The recruited patients were provided an iHealth wireless blood pressure and on-boarded on how to “connect” their device to Apple HealthKit to the patient portal, which would feed into the clinicians view of the patients’ EHR.

Madan Dharmar, Ph.D., an associate professor in residence at the Betty Irene School of Nursing at UC Davis and the Department of Pediatrics at the UC Davis School of Medicine, and dubbed as the “mastermind” of this project, notes that the diabetic initiative was the organization’s first foray into patient-generated health data, and thus it focused on non-actionable data. “So this means metrics around physical activity, nutrition, sleep, how much energy is taken in and being spent, and calories spent and taken in. This is all non-actionable data,” Dharmar says. “The uniqueness of this project is that we wanted for providers to be able to take a four-week period, for instance, so they have a complete understanding and flexibility for how to look at that data and how it’s being presented to them. We needed to capture all of that data and have it within the EHR so they could pick a specific time period, drill into it, and understand the data from that time period,” he explains.

Dharmar notes that UC Davis Health also wanted to give physicians the ability overlay that data with other clinical metrics which are routinely collected, such as lipid profiles and HbA1c levels so they can have a conversation with the patient. “This way, they can tie that patient-generated health data with the clinical data and help them understand how a behavior change in their lifestyle can have an impact in how they manage that disease. So that’s why we wanted to collect all the data points and have it all within our EHR,” he says.

How Accurate and How Valuable?

An Accenture survey from March 2016 found that the number of U.S. consumers who use wearables and mobile apps for managing their health has doubled in the past two years. What’s more, the research that included a survey of more than 8,000 worldwide consumers revealed that of the one in five consumers were asked by a doctor to use wearables to track their health, such as fitness or vital signs, three-quarters (76 percent) followed their physician’s recommendation.

Despite this uptick in wearables and mHealth app usage, many providers find that issues around data quality and integration into EHRs are still major pain points. Dharmar says that data integrity was a big concern of UC Davis Health’s, as it’s commonly known that if physicians don’t trust the data they’re getting, they won’t use it. “A lot of patient-generated health data integration is focused on the patient entering the data, but there are questions around patient errors and also about the honesty of the patients who are the entering data when they are told they need to meet a certain criteria to meet goals,” Dharmar says. “We automated a lot of that process so that once the data is acquired by a certain device, it gets into our EHR. So there were really no issues around data quality at that point in time,” he says.

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