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Population Health: Organizational and Data Governance, and Analytics Strategies

January 5, 2017
by Kevin Lamb, Health Catalyst
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Executive Summary: The Scottsdale Institute (SI) convened 13 data, analytics, and information executives in Chicago for the 2016 SI Chief Data and Analytics Officers Summit on Oct. 6, 2016. They gathered to share issues, insights and lessons learned on the journey to population health, with specific focus on the governance and management of data and analytics. Attendees represented large academic medical centers, multi-regional health systems, rural hospitals and clinics, and physician networks from across the nation.

Summit Participants: Albert Duntugan, senior director of enterprise information architecture, UCLA Health; Tina Esposito, vice president, center for health information services; Advocate Health Care; Mark Hohulin, senior vice president, healthcare analytics, OSF innovation, OSF HealthCare System; Rick Howard, senior director, business development, Ascension Information Services; Miriam Morales, director for strategic analytics—Mischer Neuroscience Associates, Memorial Hermann Health System; Deborah O’Dell, vice president, business intelligence, Catholic Health Initiatives, John Pirolo, M.D., senior vice president and CMIO, Ascension; Julia Swanson, vice president, performance analytics and improvement, Henry Ford Health System; Dellara Terry, M.D., medical director for population health management, clinical analytics, Partners HealthCare System; Randy Thompson, M.D., CMIO/security, Billings Clinic; Christine Watts, chief enterprise architect, The University of Chicago Medicine; Eric Yablonka, vice president and CIO, The University of Chicago Medicine; Timothy Zeddies, Ph.D., vice president, system analytics and data governance, Spectrum Health.

Organizer: Scottsdale Institute; Sponsor: Health Catalyst; Moderator: Tom Burton (Health Catalyst)

What’s Keeping CEOs Up at Night

To kick the discussion off, participants were asked to share what’s keeping their CEOs as well as themselves up at night. What are the big issues and barriers facing the nation’s healthcare systems? One common theme was the move from fee-for-service to value-based payment models, a concern voiced by several in the room, but shared by all. Dellara (Lara) Terry, M.D. of Partners explained that there is “an unquenchable thirst for data analytics” and therefore the goal is to “focus on where there is the greatest opportunity for care and system improvement.” Timothy Zeddies, Ph.D. of Spectrum agreed, saying “there is a tidal wave of desire for this kind of information” and the challenge is putting in place the infrastructure to support that. Randy Thompson, M.D. at Billings Clinic pointed out that his CEO believes “the future of medicine is analytics.”

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A second common issue was the pace of change, whether it’s with accountable care, marketplaces or trends. Deborah O’Dell of Catholic Health Initiatives (CHI) acknowledged that this shift to value-based care means “doing the right thing even if it is only a small percentage of current revenue.” Eric Yablonka with The University of Chicago Medicine commented that Chicago is a rapidly changing marketplace, quickly catching up to where other markets have been for some time in dealing with this shift to value-based care. For Julia Swanson of Henry Ford Health System, provider-side analytics teams are paired with performance improvement teams and one source of insomnia is “having the right information to make decisions and getting that information to the right people.” Miriam Morales at Memorial Hermann expressed a similar concern in “getting the data to the people who need it most in a useful and reliable way.” Albert Duntugan of UCLA Health said his CEO was concerned with “how to blend the university’s mission of research while maintaining profitability in a challenging environment of narrow networks.” John Pirolo, M.D. at Ascension explained that managing the rate of change is his highest priority. Rick Howard at Ascension Information Services said his challenge is “leveraging and utilizing data across the system and turning data into answers, whether it’s clinical, financial or operational.”

Transitioning to the Economics of Value-Based Care

Tom Burton of Health Catalyst provided this framework for understanding the overall journey to population health and the shift to value based care, acknowledging that managing the pace of change is a universal challenge.

The resulting discussion focused on the fact that these stages were not experienced in a stepwise fashion, rather all four were experienced simultaneously, depending on market conditions and organizational priorities. These “pockets of improvement” might be found in specific clinical areas, for example, whereas in other cases an improvement effort gets started and then priorities change and the organization is unable to sustain the change. Tina Esposito at Advocate Health Care pointed out that this challenge of planning for accountable care while still getting paid fee-for-service demands an “incredible need to innovate.” She added, “This translates into an overriding need for analytics and measurement as a centralized focus, for example our focus on Patient Safety, with the goal of ‘zero defects’ by 2020.”

While all participants acknowledged they were active in all stages simultaneously, most agreed they were somewhere between sustaining and succeeding overall.

Population Health: Motivation and Timeframe

Tom Burton of Health Catalyst offered a model to address this challenge by looking at what is motivating an organization to change and how quickly. The first dimension (the x-axis) is Motivation, where some organizations are motivated toward population health in financial and operational ways, and others are motivated clinically. The second dimension (the y-axis) is Timeframe, with some organizations thinking long-term and others short-term. These dimensions create the following four quadrants of population health efforts:

1.            Long-term financial/operational                3.            Long-term model of care

2.            Short-term financial/operational              4.            Short-term model of care

Organizations in each quadrant are working on different programs to achieve different incentives, but the group agreed that success in the long-term strategies requires success in the short-term tactics, i.e., working in multiple quadrants simultaneously.

Julia Swanson said, “Sometimes we think we have to do it all. We can move everything an inch, but we need to take some key areas, focus efforts and resources on those, build organizational capabilities and then move on. We need to make sure that we do not spread improvement like peanut butter.”

Dr. John Pirolo said Ascension “is spending a lot of time in the two upper quadrants (Figure 2) on strategy, and lots of time in the two lower quadrants tactically, working to gain enterprise momentum moving toward getting into the top two quadrants.” Christine Watts, The University of Chicago Medicine, said that “what we struggle with is knowing how fast we should go, how to get people on board, and how the long-term strategies should translate into short-term efforts.”

With one foot in the fee-for-service world and the other in value-based payments, it’s difficult to know what kind of message to send providers to get them aligned. These observations led right to the point being made, that healthcare organizations have to accept the challenge of working in all four quadrants at the same time.

Required Capabilities for Improvement

Efforts at improvement require the synergy of multiple processes and systems, not just technology. Three core capabilities are needed for clinical, cost and experience outcomes improvement:

1. Best Practice—what the system should be doing;

2. Analytics—how we measure and predict how the organization is doing;

3. Adoption—how to change and what pace of change can be tolerated.

Systematic outcomes improvements are possible when all three of these capabilities are in play, but they can be scaled only when the psychology of outcomes improvement is embedded within the leadership, culture and governance of the organization and when everyone is financially aligned.

The Need for Governance

The need for governance of data and data-related initiatives was a critical issue raised by the group. When participants were asked about the most prevalent symptoms of less-effective governance within their organizations, three issues echoed:

1. The inability to say ‘no’ to lower priority projects;

2.  The light efforts in many areas with no deep efforts on the critical few; and

3.  The lack of initiatives spreading across the organization.

Eric Yablonka, at The University of Chicago Medicine, said, “We have many important priorities and everyone with an enterprise view sees all those priorities, so there are challenges around allocation.”

Tom Burton suggested that well-designed governance significantly helps with optimally allocating scarce resources and increasing the breadth and depth of improvements. He outlined four core principles of effective outcomes governance:

Principle #1: Starting at the top, engage all stakeholders around a common vision.

Principle #2: Have a common understanding of organizational needs, capabilities and readiness.

Principle #3: Use a consistent improvement methodology, align incentives and balance polarities.

Principle #4: Focus: Practice disciplined decision-making to prioritize, fund, organize and sustain improvements.

The Need for Data Integration

The topic of data integration is a hot one and a handful of subtopics garnered the most attention. For example, among payers, providers and patients, who owns data? Data sharing carries the burdens of confidentiality, legal liability, relevance and difficulty of sharing. The storing, sharing and analysis of data is the bedrock of population health. Inpatient and outpatient episodes of care among entire patient populations generate an abundance of data, yet it all exists in silos and the multitude of data sources aren’t integrated.

Hospital systems come at this challenge in many different ways and participants shared their architecture and tactical approaches. The encyclopedia of technology and analytics providers was represented, including the major EHRs (Epic, Cerner, McKesson, Allscripts), data warehouses, analytics platforms, and population health management tools (Hadoop, Health Catalyst, HealtheIntent, Optum One, Caradigm).

Miriam Morales said that Memorial Hermann “just started with HealtheIntent, so we are getting a lot of different data into that system. We are in the beginning stages of outlining how these data will integrate with existing systems, data governance, and how to leverage data across the system.”

Albert Duntugan said that UCLA Health is doing a lot of early binding of data through their Epic data warehouse, which requires substantial upfront resources to do mapping and documentation of lineage. He also said that the changing specifications from payers and monitoring of data quality requires constant vigilance from a small team of business analysts, data-quality specialists and ETL programmers. Regarding payer-provided data, Duntugan said that payers have varying levels of quality and completeness depending on the size and sophistication of the payer organization.

Partners’ Dr. Lara Terry said, “In our Enterprise Data Warehouse we combine claims and clinical data in an integration layer. It’s very effective and facilitates our analysts’ work.”

The group raised the issue of incorporating unstructured data into analytics. Ascension is experimenting with using Natural Language Processing (NLP) for physician transcriptions and nursing notes to derive meaningful clinical information. The challenge is defining standard dictionary sets. Billings Clinic uses unstructured data more for clinical decision support than for true analytics. Their transcription vendor runs their notes and reports through an NLP engine.

The conversation then turned to data quality and the issues of data accuracy, timeliness and completeness. The language of healthcare data has many ‘dialects’ that continue to interfere with the sharing and mapping of patient information. While standards exist, too many entities along the prospective interoperability pipeline don’t use them. It was noted, “If standards were used in telecom the way they are used in healthcare, then switchboard operators would still be connecting calls.” Standards exist on the billing side, with ICD-10 and CPT codes, but formal, structured, clinical data across disparate systems doesn’t exist.

Data Security Issues

The demand for role-level security is increasing with increasing data integration. Defining who gets access to what subsets of data is the responsibility of several leadership groups at Ascension. Rick Howard said, “We have some location-specific security roles that we’re trying to identify. For example, with our employed physicians, we have some information that only the dyad leadership can review because of the sensitivity of the data.”

Having enterprise-level and role-based access needs uniform roles defined across the entire enterprise. This calls for some handshake activity with HR to rebuild infrastructure for mapping access to titles. Eric Yablonka said, “We are trying to do the right thing, but we can’t continue to do it in an agile way without process improvements,” thus implying the need for this infrastructure remodel.

Christine Watts voiced a concern with the volume and variety of software vendors and their impact on security. “We integrate data across many different solutions across our organization. Some of these are custom-built solutions, but many are packaged software solutions that are hosted both internally and externally to our environment. We must move data across our entire network. As we consider outsourcing, offshoring and sharing information on exchanges, we have to consider how we secure that data in and outside of the organization.”

Deborah O’Dell said that, with regard to vendor contracting, there are challenges with people signing contracts when they don’t have any experience in backend data platforms. This can result in one vendor being out of compliance with basic data-security protocols because they outsource to—and share data with—a second vendor.

The security conversation continued with the majority of attendee organizations identifying at a SOC II level security protocol.

The Need for Social Determinants of Health

Along with patient-reported outcomes and activity-based costing data, population health requires incorporating social determinants of health: education, employment, income, community support, and family and social support data. This introduces new elements of data consent, data storage and data curation, as well as the time to track it all. Tina Esposito said this adds more to how we govern data. “We’re late to the party. We pull all this data together and it’s clear that we don’t have one person as an asset in the organization who knows all the data. We have to bring leaders of knowledge together. We need to be clear on how we use all these datasets.”

…and Longitudinal Data Management

Population health requires lifetime engagement of entire patient populations and managing longitudinal data. To manage the profile of a patient over time can involve 60 or 70 source transactional systems flowing into a data warehouse. Longitudinally connecting an individual patient’s data from all these sources requires a unique strategy and some thought about who owns the data. Dr. Randy Thompson said, “We get all this different data that lands in our data mart, but there’s no way to see the sequence of events as a patient progresses through our system.”

Tom Burton at Health Catalyst talked about the work that Anne Milgram, former New Jersey Attorney General, is doing with analytics to reform the criminal justice system. Social determinants of health have a large overlap with the social determinants of crime. The economics that drive our criminal justice system thrive on crime not innocence. He wondered if anyone has started to experiment with bringing in criminal justice data to enhance predictive modeling and drill into root causes. This raised the prospect of medical ethics and bias in providing care, but it was also agreed that this type of data could prove helpful. We need to treat the whole person and the more information we know about the whole person the more accurate the care we can provide.

Tom Burton also shared a story of population health mimicking public health in New Ulm, Minnesota, where they conducted geospatial analysis to see hotspots of inactivity and chronic illness and disease. They then used that data to deploy community services and activities for promoting health and wellness, generating impressive results over a ten-year period.

The group agreed that not everything in population health is a big-data, high-cost issue. Sometimes it’s simply a matter of engaging with the community. For example, when Catholic Health Initiatives (CHI) found that teenage drivers in a small Midwestern town experienced a high number of accidents during the winter because they were driving to a nearby town to see movies, CHI built the town a movie theater. The result was a dramatic drop in auto accidents.

The group discussed patient-reported outcomes as another component of longitudinal data. More patients want more doctors to use measurements from their fitness devices. But this brings up more issues of data accuracy, validation, storage, liability and usage. Fitness devices and wellness programs are great motivational tools, but the consensus was that the popular devices lack the data quality required for population health. “We have a FitBit-type device whose heart-rate monitoring is unproven scientifically,” said Eric Yablonka, “but everybody talks about we need to get connected health data.”

The Need to Redesign Care Delivery

When participants were asked to describe the effectiveness and ROI of their care plans and workflows, and how they have incorporated such results into future risk models and care-plan design, the general consensus was that it’s hard to implement care plans consistently and it’s hard to determine the ROI.

For some, it’s difficult trying to define what the standard of care model is going to be. Outcomes for populations of people are lumped together and trying to correlate that overall population outcome with the exact care activities that took place over time is almost impossible to do. A lot of the current work is not about creating a predictive model or driving complicated analytics, but around getting clinical consensus on what the starting point will be. Healthcare systems could improve tremendously with care standards and the use of models to interpret what the outcomes will be using those standards.

Dr. John Pirolo: “We are trying to couple accountability with analytics. In the past, we treated analytics as a project, so it wasn’t necessarily connected to the people who were delivering clinical care or driving clinical redesign. What we are trying to do now is pursue analytics only in response to clinical leadership direction. When the request for analytics comes in, there’s a senior level discussion about what the expected clinical change will be in response to the analytic. This has made people more judicious about their requests because now they know they will have to generate operational change.”

Timothy Zeddies spoke about a specific care plan at Spectrum Health: “We had some interventions that were driven by the health plan. We had a lot of unnecessary care at the end of life. We created a model to care for some people individually, very one-on-one. To do that, we had to bring in a data-scientist-type person to accurately do healthcare evaluations. We found out there’s a certain kind of person who responds better to this kind of intervention.”

The group acknowledged while technology and discipline are key to creating care standards, there also needs to be a sense of urgency—which is very market-specific—people need to be afraid of failure before they make the commitment to require conformance.

Conclusion

Chief Data and Analytics Officers may be relative newcomers to the healthcare C-suite, but health systems smart enough to bring them to the senior-executive table will be the ones still standing when the dust settles on the tumultuous transition to value-based care. Because data is the lingua franca of population health, becoming a data-driven organization is imperative for a truly integrated delivery system. But the challenges of data are myriad and daunting: data quality, standards, integration, access, security, governance and management require often herculean human and technical effort. Building a data-driven culture in healthcare will demand not only system-wide discussions but industry-wide ones as well. We hope this SI Summit and report contributes to that effort.


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Renowned leaders in U.S. and North American healthcare gather throughout the year to present important information and share insights at the Healthcare Informatics Health IT Summits.

April 23 - 24, 2019 | Southern California


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Kaiser Creating Evidence-Based Complex Care Models

January 17, 2019
by David Raths, Contributing Editor
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Work aligns with recently published ‘Blueprint for Complex Care’

The National Center for Complex Health and Social Needs recently published a “Blueprint for Complex Care” to develop a collective strategy for promoting evidence-based complex care models. Recognizing that many patient issues have root causes that go beyond the medical, the Blueprint seeks to identify best practices for breaking down silos between the social care delivery system and healthcare.

Perhaps no health system has devoted as many resources to complex care as Kaiser Permanente. Its Care Management Institute, a joint endeavor between the Permanente Medical Groups and Kaiser Foundation Health Plan, has established Complex Needs as one of its national quality initiatives. It has named regional complex care leaders, created common quality measures across regions and established a complex need research arm called CORAL. (Kaiser Permanente has eight Permanente Medical Groups and regions, more than 12.2 million members, more than 22,000 physicians and 216,000 employees.)

In a Jan. 16 webinar presentation, Wendolyn Gozansky, M.D., vice president and chief quality officer, Colorado Permanente Medical Group and national leader for complex needs at the Care Management Institute, described Kaiser Permanente’s efforts and used some personal anecdotes to explain their goals.

She said Kaiser Permanenteis working on the concept of developing core competencies and tools to support a longitiudinal plan of care for patients with complex needs. “These are the folks for whom the usual care is not meeting their needs,” she said. “How do you recognize them and make sure their needs are being met?”

Gozansky gave an example from a patient she had just seen the previous wekend. This women had fallen and broken her hip. She had several chronic conditions, including significant asthma, yet she was not on an inhaled steroid.

“One concept I love from the Blueprint is that this field is about doing whatever it takes to meet the needs of the person in front of you,” she said. In speaking to the woman, she came to understand that singing in a church choir was the most important thing in her life, and the inhaler medication was making her hoarse and unable to sing.  She was fairly isolated socially except for church. “My goal was to get her rehabbed and leverage the patient-defined family that is supportive. Her goals are to sing, so we need to do what is possible to get her back to that. We have to capture that information, put it into a long-term plan of care. The goal is not to get her out of rehab but to get her singing in choir.”

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The health system has to work on care that is preference-aligned. The woman is not on a steroid inhaler but her care is preference-aligned. How does the health system assure that everyone knows they are doing the right thing?

Gozansky said the beauty of Permanente Medicine is that its setup involves an employed medical group focused on value, not volume. They can interact with health plan partners in delivery of new systems of care. “It is a virtuous cycle about value and person-centered care. This is what our complex needs team is trying to understand.”

She described the journey so far: In 2015 there were pockets of work being done across the eight Kaiser Permanente regions. In 2016 they established complex care as a national qualitiy iniative. “We knew we were not meeting these patients’ needs. We had to figure out the right way to do that.” They also realized that most of the previous research on the topic involved examples that were not in integrated systems such as Kaiser Permanente. “We had to figure it out in an integrated system,” she said.

 In 2017 they started working on cross-regional learning — for instance, taking a program from Colorado and trying it in Southern California. Then they sought to align quality measures. In 2018 they got funding to create CORAL, the complex needs research arm.  

The Care Management Institute has created a “community of practice” on complex care to break down silos within the organization and bring together research, operational and administrative executives. They also want to work with external stakeholders to make sure what they are developing is scalable, Gozansky said.

Mark Humowiecki, senior director of the National Center for Complex Health and Social Needs, also spoke during the webinar. He said one of the goals of the Blueprint was to get a clearer definition. Some people get confused about terms such as “hotspotting” and complex care, he said. He said there is a recognition that these patients’ needs are crossing traditional silos, so “there is a need to connect care for the individual but also at the system level.”

The goal, he added, is to create a complex care ecosystem by developing in each community system-level connections between social care delivery and healthcare, which in the past have operated too independently.  The five principles are that complex care is person-centered, equitable, team-based, cross-sector and data-driven. One of the Blueprint’s recommendations is to enhance and promote integrated cross-sector data infrastructures.

 

 


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NIH’s All of Us Program Teams with Fitbit for Data Collection

January 16, 2019
by Heather Landi, Associate Editor
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The All of Us Research Program, part of the National Institutes of Health (NIH), has launched the Fitbit Bring-Your-Own-Device (BYOD) project. Now, in addition to providing health information through surveys, electronic health records, and bio-samples, participants can choose to share data from their Fitbit accounts to help researchers make discoveries.

According to All of Us research program officials, the project is a key step for the program in integrating digital health technologies for data collection.

The All of Us Research Program, established by the White House in 2015, aims to advance precision medicine by studying the health data of 1 million diverse Americans over the next five years. One aim of the project is to include groups that have been historically underrepresented in research. As of September 2018, more than 110,000 people have registered with the program to begin the participant journey, and more than 60,000 have completed all elements of the core protocol.

The participants are sharing different types of information, including through surveys, access to their electronic health records and blood and urine samples. These data, stripped of obvious identifiers, will be accessible to researchers, whose findings may lead to more tailored treatments and prevention strategies in the future, according to program officials.

Digital health technologies, like mobile apps and wearable devices, can gather data outside of a hospital or clinic. This data includes information about physical activity, sleep, weight, heart rate, nutrition, and water intake, which can give researchers a more complete picture of participants’ health.” The All of Us Research Program is now gathering this data in addition to surveys, electronic health record information, physical measurements, and blood and urine samples, working to make the All of Us resource one of the largest and most diverse data sets of its kind for health research,” NIH officials said.

“Collecting real-world, real-time data through digital technologies will become a fundamental part of the program,” Eric Dishman, director of the All of Us Research Program, said in a statement. “This information, in combination with many other data types, will give us an unprecedented ability to better understand the impact of lifestyle and environment on health outcomes and, ultimately, develop better strategies for keeping people healthy in a very precise, individualized way.”

All of Us participants with any Fitbit device who wish to share Fitbit data with the program may log on to the All of Us participant portal at https://participant.joinallofus.org and visit the Sync Apps & Devices tab. Participants without Fitbit devices may also take part if they choose, by creating a free Fitbit account online and manually adding information to share with the program.

All of Us is developing additional plans to incorporate digital health technologies. A second project with Fitbit is expected to launch later in the year, NIH officials said, and this project will include providing devices to a limited number of All of Us participants who will be randomly invited to take part, to enable them to share wearable data with the program.

The All of Us research program plans to add connections to other devices and apps in the future to further expand data collection efforts and engage participants in new ways.

Related Insights For: Population Health

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NorthShore to Lead “Largest Primary Care-Based Genomics Program in U.S.”

January 14, 2019
by Rajiv Leventhal, Managing Editor
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The Chicago-based NorthShore University HealthSystem and genomics technology company Color are partnering on a new initiative that will aim to deliver the power of genomics to routine primary care at population scale.

Known as "DNA10K," the initiative will engage more than 10,000 patients and will be the largest known primary care-based genomics program in the U.S., according to officials who made an announcement last week.

The approach will build on NorthShore's years of experience in genomics and actionable electronic medical records (EMR) information, while providing access to Color's clinical-grade genetic testing and whole genome sequencing to inform patients about their risk for certain hereditary conditions, according to company executives.

“The knowledge will help patients learn about their genetic makeup, including risk factors for certain disease types such as common hereditary cancers and heart diseases. This insight will help NorthShore personalize care for each patient to support improved outcomes, prevention and overall health,” officials noted.

The announcement comes on the heels of a recent pilot between NorthShore and Color that looked to unlock the benefits of genetic information in routine care.

As officials explained, in less than two months, more than 1,000 patients signed up for the Color population health program as a part of their primary care visit, an adoption rate of more than 40 percent of those eligible and significantly beating expectations of the pilot program. “This is a strong indicator of patients' interest in understanding genetic factors that can influence health and the opportunity to work with NorthShore care providers to make more informed treatment or prevention decisions,” they attested.

Overall, the DNA10K initiative supports NorthShore's efforts to improve patients' health outcomes at a population level, with genomics as a foundation for informing individualized healthcare.

Patients who take advantage of the "DNA10K" offering will provide a blood sample, which is then analyzed in Color's CLIA-certified, CAP-accredited lab, and results are returned to healthcare providers and their patients. In addition to their NorthShore primary care provider, patients will also have access to board-certified genetic counselors and clinical pharmacists from Color and NorthShore, officials explained.

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