Boston Children's Accelerates Data-Driven Approach to Clinical Research | Healthcare Informatics Magazine | Health IT | Information Technology Skip to content Skip to navigation

Boston Children's Accelerates Data-Driven Approach to Clinical Research

February 22, 2018
by Heather Landi
| Reprints

In an effort to bring a more data-driven approach to clinical research, Boston Children’s Hospital has joined the TriNetX global health research network.

The trend in the healthcare industry is to gain access to a wider pool of patient data in an effort to accelerate the study start-up process and identification of patients for clinical trials. Boston Children's Hospital is live on the network, as of February 1, 2018.

“Infusing a data-driven approach into the conversation between research institutions and industry provides great efficiencies, but most importantly, it gives our patients the opportunity to potentially participate in clinical trials they otherwise wouldn't be aware of,” Piotr Sliz, chief research information officer at Boston Children's Hospital, said in a statement. “Being part of the TriNetX network allows us to collaborate around the globe with other researchers at biopharmaceutical companies who are working on new therapies that our patients need.”

TriNetX is the global health research network that enables healthcare organizations, biopharmaceutical companies and Contract Research Organizations (CROs) to collaborate, enhance trial design, accelerate patient identification for recruitment, and conduct in-depth research through the sharing of clinical, oncology and genomic data mapped to a common data model.

Network members utilize TriNetX's cloud-based, health research platform to analyze patient populations and perform "what-if" analyses in real-time. As members, healthcare organizations receive hardware and software that are configured within the organization's IT infrastructure and often builds on existing data resources such as i2b2 and Observational Medical Outcomes Partnership (OMOP). Researchers then have access to the institution's de-identified patient data through a user-friendly interface and a growing number of visualization and analysis capabilities. Biopharmaceutical companies and CROs are presented with aggregate views, but each data point in the TriNetX network can be traced to healthcare organizations who have the ability to identify individual patients, allowing clinical researchers to develop virtual patient cohorts that can then be re-identified for potential recruitment into a clinical trial.

“TriNetX provides us with a responsive, modern interface that provides sophisticated visualizations to present our internal data to investigators at Boston Children's,” Sliz said. “It is also beneficial that TriNetX is involved with several i2b2 research data warehouse projects in our community here in Boston.”

Gadi Lachman, president and CEO of TriNetX, said in a statement, “We believe this collaboration will play an important role in bringing new therapies to pediatric patients in need.”


2018 Boston Health IT Summit

Renowned leaders in U.S. and North American healthcare gather throughout the year to present important information and share insights at the Healthcare Informatics Health IT Summits.

August 7 - 8, 2018 | Boston



Research: Precision Medicine May Improve Survival in Late-Stage Cancer, Lower Costs

A precision medicine study conducted by researchers from Intermountain Precision Genomics and Stanford University School of Medicine indicates that precision oncology may improve overall survival and lower healthcare costs for advanced cancer patients.

Study: Researchers Use EHR Data to Predict Future Chronic Opioid Use

Researchers at the University of Colorado Anschutz Medical Campus are working to develop statistical models to better predict which patients will be prescribed opioid medications long-term following discharge from a hospital stay.

ONC Avoids 2018 Budget Cuts in New Spending Bill

The Office of the National Coordinator for Health IT’s (ONC) funding for 2018 will hold steady through September, at $60 million, as part of a House spending bill that was passed on Thursday.

Global Survey: Nearly Half of Physicians are Not Aware of Blockchain Technology

A survey, conducted by SERMO of 3,700 physicians across the globe, found that nearly half (47 percent) of polled physicians said that they were not aware of blockchain technology.

Wyoming Department of Health to Form Statewide HIE

Wyoming Department of Health plans to form a statewide, medical community-owned health information exchange (HIE), called the Wyoming Frontier Information Exchange (WYFI).

Four Organizations Plan to Form National Health IT Safety Collaborative

Four healthcare- and patient safety-focused organizations have indicated plans to establish a national health IT safety collaborative and are urging the Agency for Healthcare Research and Quality (AHRQ) and the Office of the National Coordinator for Health IT (ONC) to support their efforts.