CHOP Launches Data Center for Advancement of Precision Medicine | Healthcare Informatics Magazine | Health IT | Information Technology Skip to content Skip to navigation

CHOP Launches Data Center for Advancement of Precision Medicine

January 28, 2016
by Rajiv Leventhal
| Reprints

Children's Hospital of Philadelphia (CHOP) has launched a new scientific data center with the goal of advancing precision medicine.

Much of the effort at the Center for Data Driven Discovery in Biomedicine will target highly specific, even unique, biological abnormalities in childhood cancers; the center will also focus on other rare pediatric diseases. The CHOP Research Institute and CHOP's Department of Biomedical Health and Informatics have jointly launched the center, which will be the first of its kind with a pediatric focus, according to CHOP officials.

Under its "open science" model, the center will look to drive the secure generation and integration of complex genomic and clinical patient data, and develop the open-access platforms that support collaborative discovery. Researchers worldwide will be able to access this information and work together to fully empower and share ideas and approaches for new biological targets for precise, less toxic clinical treatments on behalf of children, according to officials.

"The genomics revolution ushered in by the first sequencing of the human genome early last decade is a watershed moment in discovery, opening up ever-growing paths to new disease treatments," Adam Resnick, Ph.D., founding director of the new center, said in a statement. "However, the challenge of 'big data' lies in accessing, harnessing and sharing this flood of information, especially for pediatrics."

Phillip Storm, M.D., division chief of Neurosurgery and the center's co-director, elaborated on this theme, in a CHOP press release: "Change is urgently needed in pediatric research, where territorial boundaries, scarce data, and limited technological infrastructures impede medical progress. Our center has a goal of developing new models for collaboration, data sharing and scientific integration." Joining Resnick and Storm in the Center development efforts is Jena Lilly, the Center's director of operations and strategic planning.

Both directors have been committed to working with the White House and the Office of the National Coordinator for Health Information Technology (ONC) on the Administration's Precision Medicine Initiative. That initiative was further reinforced by the "Moonshot" cancer cures initiative announced in the 2016 State of the Union Address and by Vice President Joe Biden's Jan. 15 visit with cancer experts, including CHOP researchers, in Philadelphia. "The Vice President spoke of breaking down silos to bring cancer fighters together to share data and ideas," said Resnick. "One of our major goals is to prioritize connectivity and collaboration over ownership of information."

Topics

News

Dignity Health, CHI Merging to Form New Catholic Health System

Catholic Health Initiatives (CHI), based in Englewood, Colorado, and San Francisco-based Dignity Health officially announced they are merging and have signed a definitive agreement to combine ministries and create a new, nonprofit Catholic health system.

HHS Announces Winning Solutions in Opioid Code-a-Thon

The U.S. Department of Health and Human Services (HHS) hosted this week a first-of-its-kind two-day Code-a-Thon to use data and technology to develop new solutions to address the opioid epidemic.

In GAO Report, More Concern over VA VistA Modernization Project

A recent Government Accountability Office (GAO) report is calling into question the more than $1 billion that has been spent to modernize the Department of Veterans Affairs' (VA) health IT system.

Lawmakers Introduce Legislation Aimed at Improving Medicare ACO Program

U.S. Representatives Peter Welch (D-VT) and Rep. Diane Black (R-TN) have introduced H.R. 4580, the ACO Improvement Act of 2017 that makes changes to the Medicare accountable care organization (ACO) program.

Humana Develops Medication Management Tool

A new tool developed by Humana enables the company’s members to keep a list of their medications in one place.

Four Hospitals Piloting OurNotes Initiative in 2018

Beginning in January, four academic hospitals—Beth Israel Deaconess Medical Center in Boston, University of Washington in Seattle, Dartmouth-Hitchcock Medical Center in Lebanon, New Hampshire and University of Colorado in Boulder—will begin piloting a new digital tool called OurNotes that enables patients to contribute to their clinical notes.