Database Consumer Data Retention Draws Privacy Concerns | Healthcare Informatics Magazine | Health IT | Information Technology Skip to content Skip to navigation Database Consumer Data Retention Draws Privacy Concerns

June 17, 2015
by Mark Hagland
| Reprints
News reports cite the concerns of data privacy advocates over the long-term retention of consumers’ personal data in the database supporting

According to a report at iHealthBeat online, “A federal website describes MIDAS as the ‘perpetual central repository’ for data collected under the Affordable Care Act, according to AP ABC News. The system contains information such as individuals’ names, addresses, phone numbers, birthdates, employment status, financial accounts, and passport numbers.” In January, a federal assessment of the database stated that information “is maintained indefinitely at this time.”

The iHealthBeat report quoted a report from Associated Press, via ABC News, that quoted Lee Tien, a senior staff attorney with the Electronic Frontier Foundation as saying, “A basic privacy principle is that you don’t retain data any longer than you have to. Even 10 years feels long to me,” Tien was quoted as saying.

Similarly, Michelle De Mooy, deputy director for consumer privacy at the Center for Democracy & Technology, was quoted as stating that does not notify consumers that their data are going to be stored in MIDAS.

In response to privacy advocates’ concerns, the AP/ABCS News report from June 15 quoted Marilyn Tanner, R.N., who was CMS Administrator when was launched, as having said in 2013, prior to the launch of, that “We are especially focused on storing the minimum amount of personal data possible.”






Get the latest information on Health IT and attend other valuable sessions at this two-day Summit providing healthcare leaders with educational content, insightful debate and dialogue on the future of healthcare and technology.

Learn More



Study will Leverage Connecticut HIE to Help Prevent Suicides

A new study will aim to leverage CTHealthLink, a physician-led health information exchange (HIE) in Connecticut, to help identify the factors leading to suicide and to ultimately help prevent those deaths.

Duke Health First to Achieve HIMSS Stage 7 Rating in Analytics

North Carolina-based Duke Health has become the first U.S. healthcare institution to be awarded the highest honor for analytic capabilities by HIMSS Analytics.

NIH Releases First Dataset from Adolescent Brain Development Study

The National Institutes of Health (NIH) announced the release of the first dataset from the Adolescent Brain Cognitive Development (ABCD) study, which will enable scientists to conduct research on the many factors that influence brain, cognitive, social, and emotional development.

Boston Children's Accelerates Data-Driven Approach to Clinical Research

In an effort to bring a more data-driven approach to clinical research, Boston Children’s Hospital has joined the TriNetX global health research network.

Paper Records, Films Most Common Type of Healthcare Data Breach, Study Finds

Despite the high level of hospital adoption of electronic health records and federal incentives to do so, paper and films were the most frequent location of breached data in hospitals, according to a recent study.

AHA Appoints Senior Advisor for Cybersecurity and Risk

The American Hospital Association (AHA) has announced that John Riggi has joined the association as senior advisor for cybersecurity and risk.