Major Healthcare Organizations Align to Share Genomic and Clinical Data | Healthcare Informatics Magazine | Health IT | Information Technology Skip to content Skip to navigation

Major Healthcare Organizations Align to Share Genomic and Clinical Data

June 6, 2013
by Gabriel Perna
| Reprints

Seventy major healthcare organizations, including hospitals, associations, and research groups, have announced the formation of an alliance dedicated to sharing and integrating genomic and clinic data. The global, non-profit alliance features notable institutions such as Harvard University, Beth Israel Deaconess Medical Center, Johns Hopkins University School of Medicine, and Brigham & Women’s Hospital.

An article on the Eli and Edythe L. Broad Institute of Harvard and MIT website states that the organizations participating have signed a letter of intent to work together to create a not-for-profit, inclusive, public-private, international, non-governmental organization that will develop a framework of international standards that can oversee how genomic and clinical data are shared. The vision of the 70 organizations is that both clinical and genomic data will be stored in platforms built on interoperable standards.

The creation of this group came from a January meeting where 50 colleagues from eight countries met to discuss the current challenges and opportunities in genomic research and medicine. They decided this kind of framework was needed for the sake of medical progress.

A list of the participating organizations can be found here.

Linking and sharing clinical and genomic data has become increasingly popular in medicine. Recently, Mount Sinai Medical Center announced that 25,000 people have signed on to participate in its biobank program, BioMe, where each patient has broadly consented to DNA sequencing, contact from researchers, and longitudinal studies related to data embedded in the electronic medical record (EMR). 

Other initiatives have been announced at Oregon Health & Science University (OHSU) as well as Weill Cornell Medical College and NewYork-Presbyterian Hospital

Get the latest information on Health IT and attend other valuable sessions at this two-day Summit providing healthcare leaders with educational content, insightful debate and dialogue on the future of healthcare and technology.

Learn More

Topics

News

Study: EHRs Tied with Lower Hospital Mortality, But Only After Systems Have Matured

Over the past decade, there has been significant national investment in electronic health record (EHR) systems at U.S. hospitals, which was expected to result in improved quality and efficiency of care. However, evidence linking EHR adoption to better care is mixed, according to medical researchers.

Nursing Notes Can Help Predict ICU Survival, Study Finds

Researchers at the University of Waterloo in Ontario have found that sentiments in healthcare providers’ nursing notes can be good indicators of whether intensive care unit (ICU) patients will survive.

Health Catalyst Completes Acquisition of HIE Technology Company Medicity

Salt Lake City-based Health Catalyst, a data analytics company, has completed its acquisition of Medicity, a developer of health information exchange (HIE) technology, and the deal adds data exchange capabilities to Health Catalyst’s data, analytics and decision support solutions.

Advocate Aurora Health, Foxconn Plan Employee Wellness, “Smart City,” and Precision Medicine Collaboration

Wisconsin-based Advocate Aurora Health is partnering with Foxconn Health Technology Business Group, a Taiwanese company, to develop new technology-driven healthcare services and tools.

Healthcare Data Breach Costs Remain Highest at $408 Per Record

The cost of a data breach for healthcare organizations continues to rise, from $380 per record last year to $408 per record this year, as the healthcare industry also continues to incur the highest cost for data breaches compared to any other industry, according to a new study from IBM Security and the Ponemon Institute.

Morris Leaves ONC to Lead VA Office of Electronic Health Record Modernization

Genevieve Morris, who has been detailed to the U.S. Department of Veterans Affairs (VA) from her position as the principal deputy national coordinator for the Department of Health and Human Services, will move over full time to lead the newly establishment VA Office of Electronic Health Record Modernization.