Skip to content Skip to navigation

Major Healthcare Organizations Align to Share Genomic and Clinical Data

June 6, 2013
by Gabriel Perna
| Reprints

Seventy major healthcare organizations, including hospitals, associations, and research groups, have announced the formation of an alliance dedicated to sharing and integrating genomic and clinic data. The global, non-profit alliance features notable institutions such as Harvard University, Beth Israel Deaconess Medical Center, Johns Hopkins University School of Medicine, and Brigham & Women’s Hospital.

An article on the Eli and Edythe L. Broad Institute of Harvard and MIT website states that the organizations participating have signed a letter of intent to work together to create a not-for-profit, inclusive, public-private, international, non-governmental organization that will develop a framework of international standards that can oversee how genomic and clinical data are shared. The vision of the 70 organizations is that both clinical and genomic data will be stored in platforms built on interoperable standards.

The creation of this group came from a January meeting where 50 colleagues from eight countries met to discuss the current challenges and opportunities in genomic research and medicine. They decided this kind of framework was needed for the sake of medical progress.

A list of the participating organizations can be found here.

Linking and sharing clinical and genomic data has become increasingly popular in medicine. Recently, Mount Sinai Medical Center announced that 25,000 people have signed on to participate in its biobank program, BioMe, where each patient has broadly consented to DNA sequencing, contact from researchers, and longitudinal studies related to data embedded in the electronic medical record (EMR). 

Other initiatives have been announced at Oregon Health & Science University (OHSU) as well as Weill Cornell Medical College and NewYork-Presbyterian Hospital

Topics

News

IBM Security: Healthcare Cyber Attacks Prevalent, but Less Records Breached in ’16

A new report from IBM Security found that healthcare—not too long ago the most attacked industry by cyber criminals—fell out of the top five of most breached industries.

FBI Notification: Cyber Criminals Targeting FTP Servers to Compromise PHI

The Federal Bureau of Investigation issued a warning that cyber criminals are actively targeting File Transfer Protocol (FTP) servers operating in “anonymous” mode and associated with medical and dental facilities to access protected health information (PHI).

Texas HIE Approved as CMS Qualified Registry

Healthcare Access San Antonio (HASA), a health information exchange (HIE) organization in San Antonio and surrounding Texas counties, has received clearance from the Centers for Medicare & Medicaid Services (CMS) to become a qualified registry.

Media Report: Evolent Health Exploring Merger with Advisory Board

Evolent Health, an Arlington, Va.-based healthcare technology provider, is exploring a potential combination with The Advisory Board, a Washington, D.C.-based healthcare consulting firm, according to a report from Reuters published on Friday.

Urology Austin Falls Victim to Ransomware Attack, Alerts 200K Patients

The Texas-based Urology Austin has acknowledged that it fell victim to a ransomware attack in January, and has since notified some 200,000 patients that their information might have been breached.

University of Maryland Medical System Earns HIMSS Stage 6 Recognition

The University of Maryland Medical System (UMMS), based in Baltimore, has achieved Stage 6 on HIMSS Analytics’ Electronic Medical Record Adoption Model (EMRAM) for the ambulatory environment.