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Boston Children’s, Duke Develop App to Help Families Monitor Children’s Health

June 14, 2017
by Heather Landi
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Teams at Boston Children’s Hospital’s Innovation & Digital Health Accelerator (IDHA) and Duke Health System collaborated to develop an app, called Caremap, that aims to help parents and families organize and monitor their children’s health. The app is designed to be a resource for families, particularly those whose children have complex medical needs.

Designed for iOS, the app was built using the Apple CareKit framework and is available for free in the App Store.

The app enables family caregivers to securely store vital medical information and share it with health professionals as part of their care or in an emergency. Families can also use the app to track health metrics important to them and gain insights to inform their child’s care.

According to developers, the app will especially benefit children with complex medical needs, who number an estimated 500,000 in the U.S. “These children make frequent health care visits, tend to see multiple specialists, and may require emergency care away from their medical home. Using Caremap, their families can give medical providers critical information such as allergies, medical equipment they rely on and emergency action plans, by showing them the app or sending a PDF snapshot via email,” the app developers say.

The app enables families to track parameters like exercise, mood, pain and sleep, and add custom metrics of their choice, like school attendance or temper tantrums. They can view the data in colorful graphs to see trends and patterns. Caremap uses the Connect module to make it easy to share data and communications with the patient’s care team, including doctors, other healthcare professionals, family and other loved ones.

“We wanted to provide a trusted and much-needed resource that would harness the patient voice and family perspective,” Caremap clinical lead Michael Docktor, M.D., a gastroenterologist and Clinical Director of Innovation at Boston Children’s IDHA, said in a statement. “The ability to track custom parameters provides an important window into patients’ lives that is not captured in the electronic health record, but is important to families.”

“Effectively managing communication between numerous providers who care for a child with medical complexity can be a full-time job for parents,” Caremap clinical advisor David Y. Ming, M.D., a hospitalist at Duke University Medical Center and director of Duke Children's Complex Care Service. “So much effort is required to keep track of the details that often the ‘bigger picture’ perspective can get overlooked. The priority with Caremap is not only to organize relevant clinical details, but also to highlight the overall care goals. This will allow providers to know the child’s medical problems and understand directly from parents what matters most for their child and what makes their child unique. These features make this a particularly exciting opportunity to improve care for children with medical complexity.”

Laurie Glader, M.D., director of Boston Children's Complex Care Service Outpatient Program and co-director of the Cerebral Palsy and Spasticity Center, was also a consultant during Caremap’s development and she contends that the app will improve routine care by helping initiate conversations between families and providers and concretely documenting what’s been going on with a child.

“Families can track a symptom or something else they’re worried about and see patterns over time,” she says. “The parent can say ‘That’s actually better since such-and-such has been under control,’ or a provider can point out, ‘Look how much more frequently that’s happening now.’ If we start a new medication, they can track how their child responds. But the most important part of the app is that everything is centered on the family’s goals and priorities.”

The development team at Boston Children’s and Duke plans to add more functions over time. Their first goal is to connect Caremap to Cerner and Epic, the two largest electronic medical systems, via the FHIR interoperability interface. Eventually, they plan to add secure cloud connectivity; for now, data live only on the user’s iOS device.

 

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LabCorp Joins Apple Health Records Project

November 5, 2018
by Rajiv Leventhal, Managing Editor
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LabCorp, a provider of clinical laboratory and end-to-end drug development services, has announced that it has enabled Apple’s Health Records feature for its patients.

This iPhone feature aims to make it easier for LabCorp patients to access their LabCorp laboratory test results, along with other available medical data from multiple providers, whenever they choose, according to officials.

In January, Apple announced that it would be testing the Health Records feature out with 12 hospitals, inclusive of some of the most prominent healthcare institutions in the U.S. Since that time, more than 100 new organizations have joined the project,  according to Apple.

LabCorp test results are viewable in the Apple Health app for LabCorp patients who have an account with the company, and enable integration with the Health Records app. In addition to their LabCorp test results, patients will have information from participating healthcare institutions organized into one view, covering allergies, medical conditions, immunizations, lab results, medications, procedures and vitals.

Patients will receive notifications when their data is updated, and the Health Records data is encrypted and protected with the user’s iPhone passcode, Touch ID or Face ID, according to officials.

“LabCorp on Health Records will help provide healthcare consumers with a more holistic view of their health. Laboratory test results are central to medical decision making, and broadening access to this information will help patients take charge of their health and wellness, and lead to more informed dialogues between patients and their healthcare providers,” David P. King, chairman and CEO of LabCorp, said in a statement.

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HIMSS Analytics Introduces Infrastructure Adoption Model for Health Systems

October 25, 2018
by Rajiv Leventhal, Managing Editor
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HIMSS Analytics, the research arm of the Healthcare Information and Management Systems Society, announced the introduction of the Infrastructure Adoption Model, or INFRAM, which is designed to measure the technical infrastructure used within a health system.

The INFRAM focuses on five technical subdomains, allowing organizations to benchmark how their infrastructure operates within the following areas: mobility; security; collaboration; transport; and data center.

Similar to HIMSS Analytics’ well-known Electronic Medical Record Adoption Model, or, EMRAM, the INFRAM is an eight-stage model (0 – 7) that allows healthcare IT leaders to map the technology infrastructure capabilities required to reach their facility’s clinical and operational goals, while meeting industry benchmarks and standards.  The final stage, Stage 7, guides organizations towards optimized information integration, contextualization and orchestration essential for the delivery of higher order local and virtualized care processes.

For reference purposes, Stage 0 on the model represents that an organization does not have a VPN, intrusion detection/prevention, security policy, data center or compute architecture. Stage 3 signifies that an organization has an advanced intrusion prevention system, while Stage 5 represents having video on mobile devices, location-based messaging, firewall with advanced malware protection, and real-time scanning of email hyperlinks.

HIMSS officials note that by identifying specific benchmarks for organizations to reach before they go live with EMR, systems, the INFRAM aims to ensure that a health system’s infrastructure is stable, manageable and extensible. Through this, organizations can ideally improve care delivery and create a pathway for infrastructure development tied to business and clinical outcomes.

 “The INFRAM is a welcome addition to our maturity model suite and addresses a longstanding need – guiding healthcare organizations in securely implementing the infrastructure with which their EMRs are built upon,” Blain Newton, executive vice president, HIMSS Analytics, said in a statement. “We have seen health systems engage with advanced clinical applications, only for them to ‘glitch’ under infrastructure that isn't powerful enough to support their tools. With the INFRAM, healthcare providers can develop a detailed, strategic technology plan that defines their organization's current state, desired future state, and each stage in between to achieve their clinical and operational goals.”

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Clinical Team Communication and Data Access in the Palm of Your Hand

Thursday, October 25, 2018 | 1:00 p.m. ET, 12:00 p.m. CT

Eisenhower Health, a west coast-based Magnet Hospital, implemented an enterprise-wide solution enabling mobile communications and collaboration across all care teams, linking the entire enterprise, advancing its communications capabilities, creating access to an enterprise directory, and improving care team response and turnaround times.

Additionally, the system provided extensive and comprehensive reporting with data analytics showing where and to what extent response improvements were made, but also providing the information the hospital needed to better utilize the system and make adjustments to improve results.

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