Precision Medicine Initiative Seeks More IDN Participants to Expand Cohort Program | Healthcare Informatics Magazine | Health IT | Information Technology Skip to content Skip to navigation

Precision Medicine Initiative Seeks More IDN Participants to Expand Cohort Program

August 11, 2016
by David Raths
| Reprints
With launch planned this fall, PMI looking for providers with substantial EHR data experience to allow for a quick start

In July 2016 the National Institutes of Health (NIH) issued grant awards to build the foundational partnerships and infrastructure needed to launch the Precision Medicine Initiative Cohort Program this fall. It is now reaching out to integrated delivery networks (IDNs) with a funding opportunity to expand the Cohort Program’s reach.

The initial awards support a data and research support center (Vanderbilt), participant technologies center (Scripps), a biobank (Mayo Clinic) and four healthcare provider organizations (HPOs) to help build the cohort of one million or more U.S volunteers (Columbia, Northwestern, University of Arizona, and University of Pittsburgh).

NIH now hopes to add more IDNs and other large regional medical centers to the consortium. Priority will be given to IDNs that provide an added benefit to the existing consortium through the geographic regions they serve, the diversity of their patient population, their substantial EHR data experience, their capacity, and other key experience and expertise that will allow for a quick start and to complement the current award recipients, the agency said.

The HPOs responding to this funding opportunity are expected to have long-standing relationships of trust with their patients and to be able to make available a longitudinal record of care through their EHR.

There are currently three types of HPOs within the PMI Cohort Program. The first type is the regional medical center (RMC) HPO; the second type is community health center HPO, such as Federally Qualified Health Centers (FQHCs); and the third type is the Veterans Administration Medical Center (VAMC) HPO.

Among other responsibilities, HPOs contribute to the PMI Cohort Program by engaging, enrolling, and retaining participants, fostering study participation, collecting data and biospecimens, conducting physical evaluations, and cultivating ongoing participant engagement over the life of the program. The program will utilize a variety of data collection methods over the life of the Cohort Program, including mobile technologies, additional research questionnaires, collection of baseline and longitudinal data from EHRs, and collection and analyses of other biospecimens.

The PMI model seeks patient input and patient-generated data. Participants will be the primary source of many research observations, providers of information about their health and experiences, consultants on proposed research studies, mediators of access to their healthcare data, contributors to overall data quality control, donators of data from six mobile and wearable devices, and recipients of their own as well as aggregate data and analysis results, according to their preferences.

Applications are due by Aug. 29. Awards made through this funding opportunity will support a 12-month, milestone-driven feasibility phase. Applicants successful under this mechanism may have the possibility of competing for a 4-year full implementation phase through a subsequent funding opportunity announcement (FOA) that will be issued in FY2017.





Get the latest information on Health IT and attend other valuable sessions at this two-day Summit providing healthcare leaders with educational content, insightful debate and dialogue on the future of healthcare and technology.

Learn More



Study will Leverage Connecticut HIE to Help Prevent Suicides

A new study will aim to leverage CTHealthLink, a physician-led health information exchange (HIE) in Connecticut, to help identify the factors leading to suicide and to ultimately help prevent those deaths.

Duke Health First to Achieve HIMSS Stage 7 Rating in Analytics

North Carolina-based Duke Health has become the first U.S. healthcare institution to be awarded the highest honor for analytic capabilities by HIMSS Analytics.

NIH Releases First Dataset from Adolescent Brain Development Study

The National Institutes of Health (NIH) announced the release of the first dataset from the Adolescent Brain Cognitive Development (ABCD) study, which will enable scientists to conduct research on the many factors that influence brain, cognitive, social, and emotional development.

Boston Children's Accelerates Data-Driven Approach to Clinical Research

In an effort to bring a more data-driven approach to clinical research, Boston Children’s Hospital has joined the TriNetX global health research network.

Paper Records, Films Most Common Type of Healthcare Data Breach, Study Finds

Despite the high level of hospital adoption of electronic health records and federal incentives to do so, paper and films were the most frequent location of breached data in hospitals, according to a recent study.

AHA Appoints Senior Advisor for Cybersecurity and Risk

The American Hospital Association (AHA) has announced that John Riggi has joined the association as senior advisor for cybersecurity and risk.