Robert Wood Johnson Project Deems PHR Privacy Inadequate | Healthcare Informatics Magazine | Health IT | Information Technology Skip to content Skip to navigation

Robert Wood Johnson Project Deems PHR Privacy Inadequate

June 18, 2009
by root
| Reprints

Project HealthDesign, a Robert Wood Johnson Foundation (Princeton, N.J.) funded project to develop PHR applications that extend and enhance the range of services offered by existing PHRs, is releasing work products and a final report from the initial phase of project.

Key findings from the report include:

  • Traditional concepts of privacy and confidentiality are in many respects inadequate to capture the way health information can be shared and distributed;
  • Patients themselves have a large and unprecedented role in helping to safeguard their own health information;
  • Society’s response to demands for privacy/confidentiality protection and best practices for information management must take into account the health aspirations and social and economic fears of patients.

The final report includes key learnings from the work of the program’s first nine grantee teams. The project is also releasing open, sharable source code and other technical code documentation produced by the grantee teams in developing PHR application prototypes which is available at

Get the latest information on Health IT and attend other valuable sessions at this two-day Summit providing healthcare leaders with educational content, insightful debate and dialogue on the future of healthcare and technology.

Learn More



KLAS Research: Small Hospitals’ Buying Decisions Impacting EMR Market Share

A new KLAS Research report tracks shifts in electronic medical record (EMR) vendor market share among acute care hospitals, and finds that smaller hospitals are seeking technology solutions that meet their needs and limited budgets, and these contracts are making a mark on the EMR market.

Survey: Majority of Providers Predict Success for New Generic Drug Company, Project Rx

Back in January, four health systems, in consultation with the VA, announced a collaboration to develop a new, not-for-profit generic drug company. A survey has found that 90 percent of providers say they would become customers of the new venture.

Personalized Medicine Awareness Low Among U.S. Adults, Survey Finds

Genetics and personalized medicine are not top of mind for the general public in the U.S., according to a recent survey from GenomeWeb and the Personalized Medicine Coalition.

Industry Organizations Praise Senate Passage of VA Mission Act

The U.S. Senate on Wednesday passed, by a vote of 92-5, a major Veterans Affairs (VA) reform bill that includes health IT-related provisions to improve health data exchange between VA healthcare providers and community care providers.

NIH Issues Funding Announcement for All of Us Genomic Research Program

The National Institutes of Health’s (NIH) “All of Us” Research Program has issued a funding announcement for genome centers to generate genotype and whole genome sequence data from participants’ biosamples.

MGMA: Physician Compensation Data Illustrates Nationwide PCP Shortage

Primary care physicians’ compensation rose by more than 10 percent over the past five years, representing an increase which is nearly double that of specialty physicians’ compensation over the same period, according to the Medical Group Management Association (MGMA).