Robert Wood Johnson Project Deems PHR Privacy Inadequate | Healthcare Informatics Magazine | Health IT | Information Technology Skip to content Skip to navigation

Robert Wood Johnson Project Deems PHR Privacy Inadequate

June 18, 2009
by root
| Reprints

Project HealthDesign, a Robert Wood Johnson Foundation (Princeton, N.J.) funded project to develop PHR applications that extend and enhance the range of services offered by existing PHRs, is releasing work products and a final report from the initial phase of project.

Key findings from the report include:

  • Traditional concepts of privacy and confidentiality are in many respects inadequate to capture the way health information can be shared and distributed;
  • Patients themselves have a large and unprecedented role in helping to safeguard their own health information;
  • Society’s response to demands for privacy/confidentiality protection and best practices for information management must take into account the health aspirations and social and economic fears of patients.

The final report includes key learnings from the work of the program’s first nine grantee teams. The project is also releasing open, sharable source code and other technical code documentation produced by the grantee teams in developing PHR application prototypes which is available at



Report: Healthcare Organizations Struggle with Human Error in Securing PHI

In the first nine months of 2017, unintended disclosure accounted for 41 percent of healthcare data breach incidents, according to a report from specialist insurer Beazley.

Three More Providers Receive 2017 HIMSS Davies Awards

Three patient care organizations have received the 2017 global Healthcare Information and Management Systems Society (HIMSS) Enterprise Nicholas E. Davies Award of Excellence for healthcare technology innovations that improve patient outcomes.

Medtronic, American Well Team Up to Integrate Telehealth Capabilities

Medtronic and American Well announced a partnership to offer a telehealth solution focused on the unique needs of the complex, chronic, co-morbid patient population.

Medsphere Merges with RCM Vendor Stockell

Medsphere Systems Corp., developer of the OpenVista electronic health record, is merging with Stockell Healthcare Systems, which offers a suite of revenue cycle management tools.

Report: Insider Threats to Patient Data Remain Unnoticed

Of the reported healthcare data breach incidents that occurred in September, it took an average of 387 days for healthcare organizations to discover a breach had occurred, according to a report from cybersecurity software company Protenus.

Reports: Ex-Pharma Exec Alex Azar Emerges as Trump’s Top Pick for HHS Secretary

President Donald Trump could be on the verge of tapping Alex Azar, a former pharmaceutical industry executive and George W. Bush administration official, as the next HHS Secretary, according to media reports.